internet-sites-and-resources-for-stem-cell-transplants

Resources for Patients and Families Going Through Stem Cell/Bone Marrow Transplant

Here are a few reputable websites explaining what a stem cell transplant or bone marrow transplant is.

Stem cell transplant is the same as a bone marrow transplant, but the difference is the source of stem cell collection. In bone marrow transplants, stem cells are harvested from your donor by performing a bone marrow biopsy on the donor. For stem cell transplants, stem cells are collected peripherally, meaning through a central line in your donor’s subclavian vein.

WebMD.   What to expect from a stem cell transplant                                             (https://www.webmd.com/cancer/lymphoma/features/stem-cell-transplant-expectations#3)

Leukemia and Lymphoma Society.   Stem Cell Transplantation    https://www.lls.org/treatment/types-of-treatment/stem-cell-transplantation/

Cancer.org.   Stem Cell Transplant for Cancer                                                                        https://www.cancer.org/treatment/treatments-and-side-effects/treatment-types/stem-cell-transplant.html

 

Recovering from a stem cell or bone marrow transplant is long, arduous and costly. Here are a few resources to check out for assistance.

Leukemia and Lymphoma Society (https://www.lls.org/support/support-groups). This organization provides information, education, financial support to qualifying applicants, peer-to-peer telephone support to patients and caregivers, and local face-to-face support groups. If you want to make a difference, consider volunteering for them, and you don’t have to be a patient! I’ve been volunteering with this organization for 9 months now.

Be The Match.org. The one and only national registry that matches stem cell donors and transplant recipients. Becoming a donor is easy, but please understand what you are committing to…someone’s life is at stake.

Resources for Patients and Families

 

Books and Booklets

The transplant program you are being treated at should provide these two thin books on stem cell/bone marrow transplant. If they don’t provide these, you can purchase them at the National Bone Marrow Transplant Link or nbmtLINK.

Graft Versus Host Disease: Living With The After Effects of Bone Marrow/Stem Cell Transplant by nbmtLINK.  A very good resource for understanding the physical and emotional challenges that follow a stem cell/bone marrow transplant.  Published by nbmtLINK and written by health experts in the blood and marrow transplant field. 

Survivorship Guide For Bone Marrow/Stem Cell Transplant: Coping with Late Effects by Keren Stronach. Published by nbmtLINK. You can purchase this on the nmbtLINK, but it’s available for free as a pdf. Why pay when it’s free!

 

 

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s